Peran Pelayanan Paliatif dan Suportif pada Pasien Kanker Anak
Sari
Kanker masih menjadi penyebab kematian utama pada anak. Angka kesintasan pasien kanker anak di negara berkembang masih jauh di bawah angka kesintasan pasien kanker anak di negara maju. Banyak faktor yang memengaruhi perbedaan tersebut, antara lain belum tersedianya sarana pengobatam transplantasi sumsum tulang sebagai opsi dalam tata laksana lanjutan kanker anak sehingga sangat penting peran pelayanan paliatif dan suportif dalam menunjang kualitas hidup pasien. Pelayanan paliatif dan suportif berfokus pada penanganan gejala akibat penyakit dan terapi yang diberikan untuk memberikan kenyamanan dan meningkatkan kualitas hidup pasien dengan pendekatan holistik. Perlunya pemahaman yang baik mengenai pelayanan paliatif dan suportif, kolaborasi dari berbagai pihak (multidisiplin) menjadi hal penting dalam memberikan pelayanan paliatif dan suportif yang optimal bagi pasien kanker anak dan keluarganya.
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Wu Y, Deng Y, Wei B, dkk. Global, regional, and national childhood cancer burden, 1990-2019: An analysis based on the global burden of disease study 2019. J Adv Res 2022;40:233-47.
Hui D, Hoge G, Bruera E. Models of supportive care in oncology. Curr Opin Oncol. 2021;33:259-66.
Snaman J, McCarthy S, Wiener L, Wolfe J. Pediatric palliative care in oncology. J Clin Oncol 2020 20;38:954-62.
Fitch MI. Supportive care framework. Can Oncol Nurs J Rev Can Nurs Oncol 2008;18:6-24.
Multinational Association of Supportive Care in Cancer. Multinational Association of Supportive Care in Cancer Home Page [Internet]. Diakses pada 7 Desember 2023Didapat dari: https://mascc.org/.
Jordan K, Aapro M, Kaasa S, dkk. European Society for Medical Oncology (ESMO) position paper on supportive and palliative care. Ann Oncol 2018;29:36-43.
World Health Organization. Palliative care [Internet]. 2023 [dikutip 2023 Des 5]. Didapat dari: https://www.who.int/europe/news-room/fact-sheets/item/palliative-care.
Radbruch L, De Lima L, Knaul F, dkk. Redefining Palliative Care-A New Consensus-Based Definition. J Pain Symptom Manage 2020;60:754-64.
Ullrich C, Duncan J, Joselow M, Wolfe J. Pediatric palliative care. Dalam: Kliegman RM, Nelson WE, penyunting. Nelson textbook of pediatrics. Edition 21. Philadelphia, Pa: Elsevier; 2020.
Scotté F, Taylor A, Davies A. Supportive care: The “Keystone” of modern oncology practice. Cancers 2023 29;15:3860.
Feudtner C, Friebert S, Jewell J, dkk. Pediatric palliative care and hospice care commitments, guidelines, and recommendations. Pediatrics 2013 ;132966-72.
Linebarger JS, Johnson V, Boss RD. Guidance for Pediatric end-of-life care. Pediatrics 2022 ;149:e2022057011.
Pyke-Grimm KA, Fisher B, Haskamp A, Bell CJ, Newman AR. Providing palliative and hospice care to children, adolescents and young adults with cancer. Semin Oncol Nurs 2021;37:151166.
Friedrichsdorf SJ, Postier A, Dreyfus J, Osenga K, Sencer S, Wolfe J. Improved quality of life at end of life related to home-based palliative care in children with cancer. J Palliat Med 2015;18:143-50.
Weaver M, Wichman C, Darnall C, Bace S, Vail C, MacFadyen A. Proxy-reported quality of life and family impact for children followed longitudinally by a pediatric palliative care team. J Palliat Med 2018;21:241-4.
Valdimarsdóttir U, Kreicbergs U, Hauksdóttir A, dkk. Parents’ intellectual and emotional awareness of their child’s impending death to cancer: a population-based long-term follow-up study. Lancet Oncol 2007;8:706-14.
Snaman JM, Kaye EC, Torres C, Gibson DV, Baker JN. Helping parents live with the hole in their heart: The role of health care providers and institutions in the bereaved parents’ grief journeys. Cancer 2016;122:2757-65.
Freedman JL, Beeler DM, Bowers A, dkk. Supportive care in pediatric oncology: Opportunities and future directions. Cancers 2023;15:5549.
Van De Wetering MD, Tissing WJE. Supportive care in paediatric oncology. Dalam: Olver I, penyunting. The MASCC Textbook of Cancer Supportive Care and Survivorship [Internet]. Cham: Springer International Publishing; 2018 [cited 2023 Des 7]. p. 89–107. Didapat dari: http://link.springer.com/10.1007/978-3-319-90990-5_7.
Kaye EC, Snaman JM, Baker JN. Pediatric palliative oncology: Bridging silos of care through an embedded model. J Clin Oncol 2017;35:2740-4.
Mora DC, Jong MC, Quandt SA, Arcury TA, Kristoffersen AE, Stub T. Supportive care for cancer-related symptoms in pediatric oncology: a qualitative study among healthcare providers. BMC Complement Med Ther 2023;23:104.
DOI: http://dx.doi.org/10.14238/sp25.4.2023.278-82
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