Gambaran Masalah Psikososial pada Remaja dengan Thalassemia Mayor dan Diabetes Mellitus Tipe-1

Bernie Endyarni Medise, Naela Fadhila, Tjhin Wiguna, Zakiudin Munasir, Jose R.L Batubara, Pustika Amalia Wahidiyat, H.F. Wulandari, Rosalina Dewi Roeslani

Sari


Latar belakang. Thalassemia dan diabetes mellitus tipe-1 (DM tipe-1) merupakan penyakit kronik yang banyak didapatkan pada anak dan remaja di Indonesia. Adanya penyakit kronik pada remaja dapat berisiko meningkatkan terjadinya masalah psikososial 2-6 kali dibandingkan populasi sehat. Masalah psikososial pada remaja sulit dikenali sehingga perlu dilakukan evaluasi secara rutin. The strengths and difficulties questionnaire (SDQ) adalah instrumen yang praktis dan mudah digunakan untuk mendeteksi masalah tersebut.
Tujuan. Mengetahui besaran masalah psikososial pada remaja dengan penyakit kronik di RS. Cipto Mangunkusumo, Jakarta.
Metode. Desain potong lintang pada 140 remaja (100 thalassemia mayor dan 40 DM tipe-1), usia 10-18 tahun. Subyek diminta untuk mengisi kuesioner SDQ (laporan mandiri).
Hasil. Prevalensi total skor abnormal pada remaja thalassemia mayor adalah 8%, dan DM tipe-1 adalah 15%. Tidak ada skor abnormal pada aspek perilaku pro-sosial kedua penyakit, dan aspek hubungan dengan teman sebaya DM tipe-1. Tidak didapatkan perbedaan bermakna antara diagnosis penyakit, jenis kelamin, dan tingkat pendidikan subyek pasien DM terhadap luaran hasil SDQ.
Kesimpulan. Masalah psikososial lebih banyak didapatkan pada remaja DM tipe-1 dibandingkan thalassemia mayor.


Kata Kunci


penyakit kronik; psikososial; remaja; SDQ

Teks Lengkap:

PDF

Referensi


Burns KH, Casey PH, Lyle RE, Bird TM, Fussell JJ, Robbins JM. Increasing prevalence of medically complex children in US hospitals. Pediatrics 2010;126:638-46.

Pusat Thalassemia RSUPN Dr. Cipto Mangunkusumo. Registri pasien thalassemia anak dan dewasa 2007-2018. Jakarta: Pusat Thalassemia RSUPN Dr. Cipto Mangunkusumo; 2018.

UKK Endokrinologi Anak dan Remaja Ikatan Dokter Anak Indonesia. Konsensus nasional pengelolaan diabetes mellitus tipe-1 pada anak dan remaja. Jakarta: Badan Penerbit Ikatan Dokter Anak Indonesia; 2015.

Glazebrook C, Hollis C, Heussler H, Goodman R, Coates L. Detecting emotional and behavioural problems in paediatric clinics. Child Care Health Dev 2003;29:141-9.

Hysing M, Elgen I, Gillberg C, Lundervold AJ. Emotional and behavioural problems in subgroups of children with chronic illness: results from a large-scale population study. Child Care Health Dev 2009;35:527-33.

Hysing M, Elgen I, Gillberg C, Lie SA, Lundervold AJ. Chronic physical illness and mental health in children: results from a large-scale population study. J Child Psychol Psychiatry 2007;48:785-92.

Campbell JM, Cardona L. The consultation and liaison processes to pediatrics. Dalam: Martin A, Volkmar FR, penyunting. Lewis’s child and adolescent psychiatry: a comprehensive textbook. Edisi ke-4. Philadelphia: Lippicott Williams and Wilkins; 2007.h.912-21.

Costello EJ, Edelbrock CS. Detection of psychiatric disorders in pediatric primary care: a preliminary report. J Am Acad Child Psychiatry 1985;24:771-4.

Lavigne JV, Binns HJ, Christoffel KK, Rosenbaum D, Arend R, Smith K, dkk. Behavioral and emotional problems among preschool children in pediatric primary care: prevalence and pediatricians’ recognition. Pediatrics 1993;91:649-55.

Hagglof B. Psychological reaction by children of various ages to hospital care and invasive procedures. Acta Pediatr Suppl 1999;431:72-8.

De Giacomo A, Lamanna AL, Craig F, Santoro N, Goffredo S, Cecinati V. The SDQ in Italian clinical practice: evaluation between three outpatient groups compared. Riv Psichiatr 2012;47:400-6.

Becker A, Hagenberg N, Roessner V, Woerner W, Rothenberger A. Evaluation of the self-reported SDQ in a clinical setting: do self-reports tell us more than ratings by adult informants?. Eur Child Adolesc Psychiatry 2004;13:17-24.

Erhart M, Ellert U, Kurth B, Ravens-Sieberer U. Measuring adolescents’ HRQoL via self reports and parent proxy reports: an evaluation of the psychometric properties of both versions of the KINDL-R instrument. Health Qual Life Outcomes 2009;7:1-12.

Dabelea D, Mayer-Davis EJ, Saydah S, Imperatore G, Linder B, Divers J, dkk. Prevalence of type 1 and type 2 diabetes among children and adolescents from 2001 to 2009. JAMA 2014;311:1778-86.

Felner EI, Klitz W, Ham M, Lazaro AM, Stastny P, Dupont B, dkk. Genetic interaction among three genomic regions creates distinct contributions to early- and late-onset type 1 diabetes mellitus. Pediatr Diabetes 2005;6:213-5.

Writing Group for the SEARCH for Diabetes in Youth Study Group, Dabelea D, Bell RA, D’Agostino RB Jr, Imperatore G, Johansen JM, dkk. Incidence of diabetes in youth in the United States. JAMA 2007;297:2716-23.

Seidel UP, Chadwick OF, Rutter M. Psychological disorders in crippled children. A comparative study of children with and without brain damage. Dev Med Child Neurol 1975;17;563-73.

King KM, King PJ, Nayar R, Wilkes S. Perceptions of adolescent patients of the “lived experience” of type 1 diabetes. Diabetes Spectr 2017;30:23-35.

Lehmkuhl HD, Merlo LJ, Devine K, Gaines J, Storch EA, Silverstein JH, dkk. Perceptions of type 1 diabetes among affected youth and their peers. J Clin Psychol Med Settings 2009;16:209-15.

Behdani F, Badiee Z, Hebrani P, Moharreri F, Badiee AH, Hajivosugh N, dkk. Psychological aspects in children and adolescents with major thalassemia: a case-control study. Iran J Pediatr 2015;25:1-8.

Aydin B, Yaprak I, Akarsu D, Okten N, Ulgen M. Psychosocial aspects and psychiatric disorders in children with thalassemia major. Acta Paediatr Jpn 1997;39:354-7.

Wahab JA, Naznin M, Nora MZ, Suzanah AR, Zulaiha M, Faszrul ARA, dkk. Thalassaemia: a study on the perception of patients and family members. Med J Malaysia 2011;66:326-34.

Di Palma A, Vullo C, Zani B, Facchini A. Psychosocial integration of adolescents and young adults with thalassemia major. Ann N Y Acad Sci 1998;850:355-60.

Brady AMB. Chronic illness in childhood and adolescence: a longitudinal exploration of co-occurring mental illness (disertasi). London: Queen Mary University of London, 2017.

Mednick L, Yu S, Trachtenberg F, Xu Y, Kleinert DA, Giardina PJ. Symptoms of depression and anxiety in patients with thalassemia: prevalence and correlates in the thalassemia longitudinal cohort. Am J Hematol 2010;85:802-5.

Al-Khurinej A. Emotional and behavioral problems among diabetic children. Digest of Middle East Studies 2007;16:1-11.

Alkhairi E, AlAgha AE, Alasmari A, Khan A, Hijazi N, Subahi Y, dkk. The prevalence of psychological and behavioral changes among children and adolescents with diabetes in Makkah, Saudi Arabia. Curr Pediatr Res 2018; 22:9-15.

Naguib JM, Kulinskaya E, Lomax CL, Garralda E. Neuro-cognitive performance in children with type 1 diabetes: a meta-analysis. J Pediatr Psychol 2009;34:271-82.

Gaudieri PA, Chen R, Greer TF, Holmes CS. Cognitive function in children with type 1 diabetes. Diabetes Care 2008;31:1892-7.

Schiffrin A. Psychosocial issues in pediatric diabetes. Curr Diab Rep 2001;1:33-40.

Compas BE, Jaser SS, Dunn MJ, Rodriguez EM. Coping with chronic illness in childhood and adolescence. Annu Rev Clin Psychol 2012. 27;8:455-80.

Ashraff S, Siddiqui MA, Carline TE. The psychosocial impact of diabetes in adolescents: a review. Oman Med J 2013;28:159-62.

Silverstein J, Klingensmith G, Copeland K, Plotnick L, Kaufman F, Laffel L, dkk. Care of children and adolescents with type 1 diabetes: a statement of the American Diabetes Association. Diabetes Care 2005;28:186-212.

Delamater AM. Psychological care of children and adolescents with diabetes. Pediatr Diabetes 2009;10:175-84.




DOI: http://dx.doi.org/10.14238/sp22.2.2020.83-91

Refbacks

  • Saat ini tidak ada refbacks.


##submission.copyrightStatement##

##submission.license.cc.by-nc-sa4.footer##

Informasi Editorial:
Badan Penerbit Ikatan Dokter Anak Indonesia
Jl. Salemba I No 5, Jakarta 10430, Indonesia
Phone/Fax: +62-21-3912577
Email: editorial [at] saripediatri.org

Lisensi Creative Commons
Sari Pediatri diterbitkan oleh Badan Penerbit Ikatan Dokter Anak Indonesia
Ciptaan disebarluaskan di bawah Lisensi Creative Commons Atribusi-NonKomersial-BerbagiSerupa 4.0 Internasional.